laura_seabrook: (tired)
I sort of "melted down" on the dog walk this morning. Usually it's a good time for a form of meditation. I mean, it was nice to see Bobby and Theo acting more like pack mates on the walk, following up each other's sniffs and  and such. But there came a point when, like the next wave on a beach, thoughts about my panic attack at the new year's nightclub come washing over me.

I think two things upset me about that - having the panic attack in the first place, and my friend's reaction to it afterwards.

See we went to a nightclub in particular because there was this bank from the US that was playing live there. They didn't start until after midnight. The day leading up to that everything seemed to go wrong. I was travelling down to Sydney and supposed to get there about Midday. Only everything took too long; I lost my friend's mobile number, and didn't get there until after 3-4pm. I hadn't had anything to eat since breakfast except a spring roll at Strathfield station on the way there. I had allowed time to get stuff on the way, but the both the bus and trains were late, but en route I didn't know that, so even though I had a 20 minute gap at one point I couldn't take it.

Likewise I stuffed up which bus I took to get to my friend's house in Casula, missing another opportunity to get something to eat at the local shopping centre (the bus driver dropped me near the Hume Highway thinking he was doing me a favour when in fact he doubled the distance I had to walk). A confusing and frustrating trip. About the only thing I had was some water and a Tequila before going out. That was probably a big mistake.  We (me, my friend and another friend) got to the club and the band was on in the basement We went down  there and even though I had a walking stick I ended up on a stool. And then my friend stashed her gear under the stool and told me to guard it. Only the stool was next to the stage in front of a pillar, and surrounded by everyone. And it was uncomfortable as shit.

Now she was really keen on the band and what could I do (what I didn't know was that the other friend was sitting at the back watching the bags)? I sat there and let the tension and stress mount up. And had a big panic attack - the place got crowded and I couldn't see either friend and my back was killing me and and I felt trapped and then that feeling like death was coming for me full bore was upon me. I saw Jayne and touched her on the shoulder and then ran for it - I just had to get out of the room. I got upstairs and my mobile rang but I fumbled with it and of course I didn't have any credit on it so I couldn't even answer a text asking me where I was. I sort of lost it when my friends found me and threw the phone away (they retrieved it). I spent the rest of the time that night on the sofa not moving, trying to keep it together.

But here's the thing. The management of the club thought that I was drunk (I'd only had water at the club) and my friends had to stay with me or they would have tried to bounce me out the door. Then I dozed off exhausted and got woken up by the staff (apparently if you fall asleep at a club you're considered drunk as well). So that meant my friend who was keen on the band didn't get to see any more of them, and we had to leave early. She was angry with me and seemed to think that the attack was a "tantrum". I only wish it was, because then it wouldn't affect me so much.

The next day was tense and being told by my friend that I "just needed to take control" really didn't help. It's like being depressed and being told by someone to either "cheer up" or "just snap out of it" - sigh. I had a "clumsy day" where I fuck up and my dexterity drops to nil. Ever since then I've been thinking about what I could have done to make things different. Not go is one answer. Maybe I should have said that guarding her bag in a crowd of strangers was not a good idea. Tell people - wanted to, but I felt ashamed about being limited that way, and was afraid of just such a reaction that I got.

But I'm angry too. At myself most of all. I ought to know from past history that when I pretend that there isn't a problem it guarantees that it will be one. Time and time again when I put myself in a big crowd where I don't know or can't see people I do, I pay for it. If I'm there with just one friend at my side it's not a problem. And here I am allowing that to happen. But I'm also a bit pissed off with my friends. With Jayne because she just seemed to take it as a personal affront and something I willfully do. Wish it was because if that were the case I could just stop it. And the thing is that this is not the first time I've flipped out with her at a club. We went to Blink years ago and the strobing there just forced me out. But I'm pissed with the other friend as well. They have epilepsy but unlike mine they're still having seizures and on medication (I now have "sessions" where I can't seem to speak, or write, or read). But they fucking put themselves out as an expert on it, even though they've never had auras; and they criticized me about having the tequila when they were pumped up on dope themselves.

Wonderful night wasn't it? I patched things up the day after, but I don't have much incentive to go to clubs in future. And today I just feel broken, like (as I was repeatedly as a teenager) that all I had to do was have the "right attitude" and that my issues (which I believe are in part physical/medical ones) wouldn't be a broken. WELL FUCK THAT.

I feel broken. I just do. Most days I carry on regardless, but if I don't accept that one fact it jumps up and bites me in the fucking face. I don't want "to be cheered up" or "snap out of it", nor do I want to "wallow in the problem" (as a few people I know do). But what to do? THAT, is the problem.
laura_seabrook: (tired)

Well, was going to see a film today before going to a counselling session and then go shopping. But my right knee seems just as bad today as it was yesterday. So no film, though I do need to do the other two. 

Bleugh!
 
Why? Because the cinema, counselling, and shopping are all in three different places requiring walking and/or bus trips. I can get to the counselling and back on one bus trip and a very short walk, and likewise for the shopping. But  three trips like that might be too much. Besides, I hoped to see the Batman film today, but all the available session times conflict with other plans. There is an Abraham Lincoln Vampire fil which I could get to, if I caught a bus in 22 minutes, but it's all just too rushed. I know the potential for disaster when I see it.

 Likewise, there's a Marriage Equality Rally in Newcastle tomorrow at 1pm. But all I can anticipate is a series of long bus trips, standing around for a long period, and probably no way to get home before the buses stop running afterwards. Suggested on the FB Event page for it that I needed a lift to go, but that being Facebook, someone "liked" the post and no one has offered to help. So, no Rally either.  :(

laura_seabrook: (Default)

\Some years ago I made a comment at some LGBT function that "I felt broken". A colleague of mine, may thinking that I referred to being Trans, aggressively countered with "no no you're not!" but the truth is she didn't know what she was talking about.  I felt broken as a teenager, and I feel broken now.

And it's not just my knee either. I know that even though - realistically - Bentley just wasn't suitable for my household, I know that I will cry and grieve a lot over that not being the case. But I also "feel fucked" with the Masters. I seem to be falling apart. The number of typos I have when making posts has risen dramatically over the last two years. It's only through spell-checkers that I have a semblance of coherency. I can feel myself losing my language ability. I worry that I'm not going to be able to finish my Masters regardless.

Last year I had a big panic attack over at QC in Perth after being shown some pornography. It highlighted just how "dead" certain parts of my life are. And yet (or as well I feel the loneliness of that sharply.

I feel broken, and I no longer know how to heal anymore.
 

laura_seabrook: (Default)

Had an accident while walking Bobby this morning, and it was my own fault.

Took Bobby for a slightly longer walk, one that takes us over a creek via a footbridge and back via a ford upsteam. There'd been som heavy rain last weekend but I thought after a clear day it wouldn't be a promblem. Well it wasn't, exactly, and though the creek levels were down it was flowing very quickly. Got to a point where there water was less than a metre wide and threw Bobby over to the sandy bank on the other side. No problem - he was fine and happy. Then I attempted to jump - more like a large step - and landed wrong.

I had the most terrible pain in my right knee and leg, so bad that I couldn't stop crying for a couple of minutes. I hobbled home with Bobby for the rest of the walk and it flared up a couple of times. Making breakfast was awkward because I kept getting flare-ups of pain all the time. It comes to something if I have to use a walking stick around the house!

Feel broken and old.

Not the first time I've felt this way in the last few years. But I'm afraid. I don't know what to do. Is this my future, slipping more and more into major disability? The last week I've been exhausted and tired and it's been feeling like my brain's been shutting down, of mental exhaustion with cloud openings of clarity.

Feel lost and scared.

Mixed day

May. 23rd, 2012 05:11 pm
laura_seabrook: (Default)
My knee and leg's been hurting a lot today. I didn't get out until 11am and of course my telescoping walking stick was still at the uni. Stopped off at Wallsend to return some books and check ALDI for those fold up sticks, but they were all out. Went on to uni and recovered the stick and saw my supervisors.
Nothing new. I need to wait until I get the official documents before I can take much action. What I can do is continue to write scripts for Gender Transition for Innocents. Well, that was pretty much what I expected. On the way home I did buy a fold-up walking stick from a Chemist. It was about double the price of the ALDI one but it had a couple of extras (like a plastic cover to the height stud) and had a weight allowance of an extra 10 kg. And, well, it was PINK!

12-05-23 Pink Walking Stick (folded) . 12-05-23 Pink Walking Stick (unfolded)

I will use my telescoping walking stick for the exercise walks around Barnsley, and the one above for when I go out. I'll be able to fold it up into a backpack or shoulder bag when I don't need it. When I got home I discovered that my order from AMAZON had arrived a couple of weeks early. It was a really nice surprise.

12-05-23 Amazon Order

I know a lot of what's in them, but it's always better to see how the Pros do it.


laura_seabrook: (Default)

[Error: unknown template qotd]

Shit, where to start? There's at least: epilepsy, gender dysphoria, and extreme shyness (and other health issues). But - it's not always obvious to oneself that "emerging as a better person" is what's happened. Maybe that's only a rationalisation on my part. Suggestive Wink Emote

laura_seabrook: (Default)

Jenny, who has MS and has been housebound has gone into the local rehab hospital. Last year she had pneumonia and while she was in hospital I (and my boarder) looked after her cat and dog for a couple of weeks. When she came out again she was unable to look after the cat as it needed to go out and in all the time, so I adopted it. This time around we've been looking after her dog, but this may be permanent.

See, she went in to rehab because she couldn't transfer from her wheelchair to her bed, sofa or toilet seat. Normally a "home care" worker would come and help shower her, prepare her meals and do other choices. But they won't if she can't transfer. She's had any number of periods where she's fallen down and been stuck in that position until someone came. Before she went into rehab, she in the local hospital several times for a day, taken there and back by ambulance. So this time, when she went into rehab, I looked after her dog, and it's been three weeks since then.

Last week they took her home to see if it's viable for her to live by herself. Apparently it wasn't. However, on the weekend, her mother contact me to ask if I would stay with her for a few days so that she could test this properly. I wasn't sure that this was exactly what what was wanted, as her mother often gets the details garbled. But yesterday after I finished a first aid course I stopped in at the hospital to find out what she wanted.

As she told me, she wanted someone there "just in case" while she was there for a few days for a full 24 hour period, testing the viability of living alone. That seemed reasonable to me, as it gave her a chance to live a bit longer the way she wants. And I'm a on disability allowance, not employed, so I could do it, provided I had advanced warning so I could plan ahead.

That seemed reasonable, so I agreed. On the way out I gave her my home number to pass onto the staff there so they contact me, and apparently give me the "proper training" (whatever that was). I had a phone call today from that staff, and the first thing they asked me, was if I was prepared to be a live-in carer. Huh - this isn't what Jenn had asked of me, and is a much deeper commitment! We're not talking about a few days here, but a permanent thing.

I had to say no.

Much as I love Jenn, I couldn't do this. I have a house with a mortgage. If I could bring her here I would, but the place was built in 1905 and has narrow doorways, steps (the toilet in in a small room nowhere accessible by wheelchair) and an old bathtub on legs. It'd be a death trap for her. And I've been training (room attendants course followed by first aid certificate) so that I can look for work in hotels and motels. And I'm doing that so I can finance my masters in fine arts at the local university. But if I did what they wanted, I can't see how I could do either.

And I have epilepsy, depression, some social phobia and suffer from panic attacks. Not a good combination in a carer. And my father, who had a double stroke on his birthday wasted away in a nursing home for six years before he died. Ever time I'd visit Perth (where all my family is - over 3000 km away) and visit him, it was all I could do to cope seeing him that way. I can just imagine how I'd be as I watched Jenn  slip away close hand. I think I'd last about 2-3 weeks and then break down. I just know I can't do this. Three days to a week, maybe, but forever? No.

I spoke to the counsellor there afterwards and she said that Jenny would probably go into a nursing home. Her husband Ron (who has the first stages of dementia) is already in a nearby nursing home. But if she were placed in there she'd lose all privacy and control over her environment. Jenny smokes dope to help ease the pain - that'd be gone for good in there.

I went the best quality of life for Jenn, but I can't be the carer she needs.

Have I done the right thing in saying no?

laura_seabrook: (Default)

Here's what I'm sending today (much thanks to [livejournal.com profile] mscate for her assistance):

I am writing to complain specifically about being demeaned and made to feel I had shoplifted, when my behaviour was the result of my disability. This letter refers to an an incident that occurred on the afternoon of Friday the 14th at the Glendale branch of Woolworths. A copy is being sent to Coles as well, as some of the events described affect their Glendale branch as well. I am also sending a copy to my local member, Kerry Hickey, as I am not sure of my rights but feel that I may have been discriminated against.

I suffer from epilepsy, depression, panic attacks and intermittent cognitive problems, and attempt to get by on a disability allowance. My disabilities affect my day to day life in many ways. I find shopping can sometimes be quite stressful due to my intermittent cognitive problems which affect my memory and concentration, and I am prone to panic attacks in busy and crowded places. However, shopping for specials at Coles, Aldi, Woolworths and elsewhere is an essential part of budgeting.

On Friday I went shopping at Woolworths. Before going to Woolworths, I'd shopped at K-Mart, Target, Go-Lo and Coles. I had also just come from Newcastle University, where I'd recovered my purse which I'd accidentally left there the day before. I had my "Home-maker Enviro" shopping trolley with me, but decided to put that in a Coles shopping trolley as I was feeling exhausted (partly as I was also ill from a virus), and in doing so it was easier to move around the isles.

I would have normally left my bag/trolley at the information desk but it was late in the day and I wasn't sure I'd be finished before it closed at 5:30pm, and Coles no longer allow shopping bags/trolleys to be placed behind the service counter. I purchased a number of items, in particular I bought (or though that I'd bought) four tins of Whiskas and a 1 kg packet of Friskies as they were on special (for 89c and $2.99 respectively).

As Coles didn't have plain lactose free milk (they only had skim and low fat varieties) and because they had no "Coles Brand" dry food, I decided to go to Woolworths to buy those and other items. When I got there it was busy and the checkout that I'd normally put my trolley in (next to the service desk) already had a trolley in it. The last time I'd been to Woolworths that checkout was in service and when I asked at another checkout if I could put my trolley in the spare position next to it, I was told that "I couldn't because it might have to open". I do not have use of a car, so I could not put my already purchased items in the boot. As I had receipts (or so I thought) for everything I decided to just take the Coles trolley with everything inside.

After buying a handful of items (no dry cat food as the Woolworths home brand wasn't on the shelf) I went to the checkout and proceeded to pay for those items. I was then accosted by a young male employee who wanted to know if I had receipts for everything. I produced my receipts and then he wanted to know about tins of cat food that were underneath my "Enviro" trolley. I looked underneath and found two tins of Whiskas, which I thought had rolled out of my shopping. Upon inspection of my Coles receipt only two tins of Whiskas were listed. I can only guess that they must have slipped underneath when I went through the checkout at Coles, that in my ill state I hadn't noticed them and that they weren't yet paid for.

The young man persistently said "We've had this conversation before about receipts" which I can only assume is a reference to when I was harassed a few months ago over groceries that I'd purchased from the NUSA food co-operative at Newcastle University and had taken into Woolworths. In any case, he then queried the packet of Friskies, saying that the Coles receipt stated only "CAT FOOD 1 KG", implying that I'd substituted the Friskies for some other brand.

I do not understand why I should be made to suffer for the vagaries of one company's receipts, especially when the person in question refused to phone Coles and check if the item was on sale for the price listed. As I had no receipt for the two Whiskas tins, I was forced to leave them behind, even though technically they are still property of Coles. As I left the checkout I discovered that the young man had not returned my Coles receipt. When I confronted him with that fact, he denied having retained it, and I left in disgust.

I feel terrible about the two Whiskas tins which got missed by mistake. I would be happy to pay Coles for their worth, but they are currently not in my possession, but at Woolworths Glendale. I probably should have just gone home from the university and not bothered with shopping, but I wanted to make sure I had food for my pets. I feel that I have been humiliated and unfairly accused of shoplifting.

Under these circumstances I do not feel that I can continue shopping at Woolworths in Glendale for fear of triggering panic attacks. It may be that I stop buying at Woolworths entirely, instead, shopping at Coles, Aldi, and other alternatives. Should anyone ask me why I do not, I shall have to say that it's because Woolworths takes advantage of its disabled customers.

Now nothing might come of this, but I felt it important to make them aware of just what happened, and why I shall discontinue my patronage there. The copy gets sent to Coles because it was their tins that were removed. I sent a copy  to my Local Member, not because I think he'll do anything, but to make them aware how disabilities can affect simple, everyday events. Also, every time I've tried to edit and improve the letter myself, I just freeze up. Not exactly sure why, but it's disturbing that I do.

Perhaps the whole thing strikes very deep in my fears about not being the best person that I possibly can. When shit like this happens, I just feel inadequate and damaged. I think too, that I've been fighting the label "disabled" for a long long time, and it is rather upsetting when reality catches up with my own self image. I'd rather be intelligent, clever and charismatic, but sometimes I just seem to be dumb, slow and lost.

So it goes. Now to go to the library and print and then post copies, so that it will be done. Later today I'll take a crack at VERSAS and/or maybe do a page of web comics.

laura_seabrook: (Default)
07-09-11_Switch
laura_seabrook: (Default)

After yesterday, I'm worried that I'm still having epileptic seizures.

There were two instances that seemed to match my fears on the matter. The first was at the public library just after I'd changed clothes in the disabled toilet, and the second was some very puzzling experiences during an interview presentation seminar. The night before I was up 'til 1am, and woke up at 6am in order to catch a 7:30am bus.

Post Lunch

I had a large Chinese lunch at a food hall, and then went to the disabled toilets next to the city library to change into some new clothes - brand new leather shoes and a shirt. It was like my concentration just seemed to dissolve. A strap on my backpack broke and I tied it off, then it was like I was moving in slow motion.

During the Seminar

After that I returned to the employment agency for a training session on interviews. There were three of us at the session, not including the two trainers. One had to leave and two more showed up. This was in a medium sized room with two fluoro lights. We watched a Powerpoint presentation from a small projector.

Anyway, I was paying attention to this, or trying to, when I started feeling odd. I felt incredibly sleepy and started blinking my eyes at a rapid rate. I think I had a micro sleep and then woke up when one of the instructors asked me a question. It was like a corner of the room had become dimmed. The person asking the question was in that corner, and they seemed less 3D than everyone else. This weird effect continued while I was still in the room. I turned my head from side to side, and moved my eyes, but the effect stayed in that one corner of the room.

After it ended, I went to the toilets to change and when I came back the effect was gone. I asked the presenters about changes in brightness, and one of them said that she thought that I'd been having a seizure because of my heavy blinking.

I've never had the second happen to me before. I have been concerned of late that I am having seizures and not knowing it. Early this year I seemed to lose the power of speech for 30 minutes. A few years ago I just couldn't talk properly for about the same amount of time.

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