The right to know
Friends and associates are so ephemeral on the net. After an experience in Second Life in 2008, I've sometimes wondered...
How would you know on Facebook, Live Journal or a mailing list/forum if someone died, if all that happened was that they stopped posting?
...and this for me highlights the difference between virtual and actual friendships. Not of course, that one always knows what happens in the real world either. I was very hurt in 1995 when someone I knew for over 10 years in the public service and considered a friend Doug got married. Not only was I not invited (which I put down to the fact that I'd only just started my transition), I was only told about it well after the event, by an ex of mine who had been invited and assumed I knew! When I came back briefly after a geographical in Sydney, I learned that Doug and his wife were living a few blocks away from my parent's house. I dropped in and his wife's first words were "Hey you look like a regular woman!" Great, and I never visited or contacted either of them again.
Yesterday I phoned Robyn, who had accompanied me to Phuket in 2000 and whom (I learned in retrospect) had been an ex of Jenny's (and now lived a fair distance away). I felt that it was only right that she knew Jenny had died, and had a feeling no one else would tell her.
Long periods of Decline
Last night I phoned Mum and talked about jenny's death and it was a great help.
For six years my mother visited my father William in a nursing home once or more a week (with much appreciated help from Thelma Gunnell), since his double stroke on his birthday in 2000. That was the same year I went to Phuket, and it cast a pall over that event when i worried about my father. Selfishly I was glad that I no longer lived in Perth because I doubted that I could have coped with seeing the constant decline of Bill from the person I knew to the frail physical shell he became.
But that's what was in store for jenny.
There was no cure, no way of reversing the process of steady decline that the Multiple sclerosis inflicted on her. She was well past the stage were medical intervention could do more than just ease the pain. When I first saw her, she was walking. When I first met her in person, she used a walking a frame, and then it became a wheelchair at home, and a motorised chair enabled her to go shopping locally (and in which, to my amazement, she was able to go all the way to Wallsend plaza to get smokes!) There came a point when she could no longer use a car and she sold it. When she could no longer transfer to and fro the chair she could no longer keep her flat and any degree of independence which, with the help of Homecare, she still had.
My father never had that - at one point he was getting out of bed ready for his birthday, and the next just a few degrees above being a vegetable - but he never knew it was coming. Jenny did, and on more than one occasion talked about suicide before it got to the stage where she could do nothing for herself and couldn't communicate either. She was a trained nurse, and knew what was coming. Yesterday she could talk, but she couldn't even use her remaining hand to do anything. So when my mother told me that "it was a mercy that Jenny went when she did", I guess she knows what she''s talking about.
Lots of crying to do, either way